European Journal of Cancer
Volume 45, Issue 10 , Pages 1744-1747 , July 2009

Assessment of health-related quality of life after bone cancer in young people: Easier said than done

Received 9 January 2009 ,Revised 12 February 2009 ,Accepted 26 February 2009.

References 

  1. Gatta G, Capocaccia R, Coleman MP, Ries LA, Berrino F. Childhood cancer survival in Europe and the United States. Cancer. 2002;95:1767–1772
  2. Stiller CA, Passmore SJ, Kroll ME, et al. Patterns of care and survival for patients under 40 years with bone sarcoma in Britain, 1980–1994. Brit J Cancer. 2006;94:22–29
  3. Katz ER, Burwinkle T, Varni JW, et al. Health-related quality of life. In:  Bleyer A,  Barr RD editor. Adolescents and young adults with cancer. Heidelberg: Springer-Verlag; 2005;
  4. Saxena S, Orley J On behalf of the WHOQOL Group. Quality of life assessment: The World Health Organization perspective. Eur Psychiatr. 1997;12:263–266
  5. Fayers PM, Machin D. Quality of life assessment, analysis and interpretation. New York: Wiley; 2000;
  6. Langeveld NE, Stam H, Grootenhuis MA, Last BF. Quality of life in young adult survivors of childhood cancer. Support Care Cancer. 2002;10:579–600
  7. Bleyer WA, O’Leary M, Barr R, Ries LAG, editors. Cancer epidemiology in older adolescents and young adults 15 to 29 years of age, including SEER incidence and survival, 1975–2000. NIH Pub. No. 06-5767. Bethesda, MD: National Cancer Institute; 2006
  8. Eiser C, Grimer RJ. Quality of life in survivors of a primary bone tumour: a systematic review. Sarcoma. 1999;4:183–190
  9. Asknes LH, Hall KS, Jebsen N, Fossa SD, Dahl AA. Young survivors of malignant bone tumours in the extremities: a comparative study of quality of life, fatigue and mental distress. Support Care Cancer. 2007;15:1087–1096
  10. Nagarajan R, Neglia JP, Clohisy DR, et al. Education, employment, insurance and marital status among 694 survivors of pediatric lower extremity bone tumors. Cancer. 2003;97:2554–2564
  11. Paul SJ. Long term quality of life outcomes in pediatric bone cancer: a systematic review. J Nurs Stud Res. 2008;1:6–12
  12. Felder-Puig R, Formann AK, Mildner A, et al. Quality of life and psychosocial adjustment of young patients after treatment of bone cancer. Cancer. 1998;83:69–75
  13. Hudson MM, Mertens AC, Yasui Y, et al. Health status of adult long-term survivors of childhood cancer: a report from the childhood cancer survivor Study. JAMA. 2003;290:1583–1592
  14. Reulen RC, Winter DL, Lancashire ER, et al. Health-status of adult survivors of childhood cancer” a large-scale population-based study from the British Childhood Cancer Survivor Study. Int J Cancer. 2007;121:633–640
  15. Johansen R, Nielsen OS, Keller J. Functional outcome in sarcomas treated with limb salvage surgery or amputation. Sarcoma. 1998;2:19–23
  16. Asknes LH, Bauer HCF, Jebsen NL, et al. Limb-sparing surgery preserves more function than amputation. J Bone Joint Surg (Brit). 2008;90-B:786–794
  17. Gill TM, Feinstein AR. A critical appraisal of the quality of quality of life measures. JAMA. 1994;272:619–626
  18. Aaronson NK, Ahmedzai S, Bergman B, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1993;85:365–376
  19. Varni JW, Katz ER, Seid M, et al. The Pediatric Cancer Quality of Life Inventory (PCQL-32). 1. Reliability and validity. Cancer. 1998;82:1184–1196
  20. Robitail S, Simeoni M, Erhart M, et al. Validation of the European proxy KIDSCREEN-52 pilot test health-related quality of life questionnaire: first results. J Adol Health. 2006;39:596.e1–596.e10
  21. Horsman J, Furlong W, Feeny D, Torrance G. The Health Utilities Index (HUIR): concepts, measurement properties and applications. Health Qual Life Outcomes. 2003;1:54–67
  22. Patrick DL, Erickson P. Health status and health policy: quality of life in health care evaluation and resource allocation. New York: Oxford University Press; 1993;
  23. Varni JW, Seid M. Rode CA: The ‘PedsQL’ measurement model for the pediatric quality of life inventory. Med Care. 1999;37:126–139
  24. Ware JEJ, Kosinski M, Keller SD. Physical and mental health summary scales: a user’s manual. Boston, MA: The Health Institute; 1994;
  25. Cremeens J, Eiser C, Blades M. Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales. Health Qual Life Outcomes. 2006;4:58
  26. O’Leary TE, Diller L, Recklitis CJ. The effects of response bias on self-reported quality of life among childhood cancer survivors. Qual Life Res. 2007;16:1211–1220
  27. Breetvelt IS, van Dam FSAM. Underreporting by cancer patients: the case of response-shift. Soc Sci Med. 1991;32:981–987
  28. Sprangers MAG, Schwartz CE. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med. 1999;48:1507–1515
  29. Eiser C, Jenney MEM. Measuring quality of life. Arch Dis Child. 2007;92:348–350
  30. Holzner B, Kemmler G, Sperner-Unterweger B. Quality of life measurement in oncology – a matter of the assessment instrument?. Eur J Cancer. 2001;37:2349–2356

PII: S0959-8049(09)00168-3

doi: 10.1016/j.ejca.2009.02.025

European Journal of Cancer
Volume 45, Issue 10 , Pages 1744-1747 , July 2009