« Previous
Next »
European Journal of Cancer
Volume 45, Issue 10
, Pages 1744-1747
, July 2009
Assessment of health-related quality of life after bone cancer in young people: Easier said than done
References
- . Childhood cancer survival in Europe and the United States. Cancer. 2002;95:1767–1772
- Patterns of care and survival for patients under 40 years with bone sarcoma in Britain, 1980–1994. Brit J Cancer. 2006;94:22–29
- Health-related quality of life. In: Bleyer A, Barr RD editor. Adolescents and young adults with cancer. Heidelberg: Springer-Verlag; 2005;
- . Quality of life assessment: The World Health Organization perspective. Eur Psychiatr. 1997;12:263–266
- . Quality of life assessment, analysis and interpretation. New York: Wiley; 2000;
- . Quality of life in young adult survivors of childhood cancer. Support Care Cancer. 2002;10:579–600
- Bleyer WA, O’Leary M, Barr R, Ries LAG, editors. Cancer epidemiology in older adolescents and young adults 15 to 29 years of age, including SEER incidence and survival, 1975–2000. NIH Pub. No. 06-5767. Bethesda, MD: National Cancer Institute; 2006
- . Quality of life in survivors of a primary bone tumour: a systematic review. Sarcoma. 1999;4:183–190
- . Young survivors of malignant bone tumours in the extremities: a comparative study of quality of life, fatigue and mental distress. Support Care Cancer. 2007;15:1087–1096
- Education, employment, insurance and marital status among 694 survivors of pediatric lower extremity bone tumors. Cancer. 2003;97:2554–2564
- . Long term quality of life outcomes in pediatric bone cancer: a systematic review. J Nurs Stud Res. 2008;1:6–12
- Quality of life and psychosocial adjustment of young patients after treatment of bone cancer. Cancer. 1998;83:69–75
- Health status of adult long-term survivors of childhood cancer: a report from the childhood cancer survivor Study. JAMA. 2003;290:1583–1592
- Health-status of adult survivors of childhood cancer” a large-scale population-based study from the British Childhood Cancer Survivor Study. Int J Cancer. 2007;121:633–640
- . Functional outcome in sarcomas treated with limb salvage surgery or amputation. Sarcoma. 1998;2:19–23
- Limb-sparing surgery preserves more function than amputation. J Bone Joint Surg (Brit). 2008;90-B:786–794
- . A critical appraisal of the quality of quality of life measures. JAMA. 1994;272:619–626
- The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1993;85:365–376
- The Pediatric Cancer Quality of Life Inventory (PCQL-32). 1. Reliability and validity. Cancer. 1998;82:1184–1196
- Validation of the European proxy KIDSCREEN-52 pilot test health-related quality of life questionnaire: first results. J Adol Health. 2006;39:596.e1–596.e10
- . The Health Utilities Index (HUIR): concepts, measurement properties and applications. Health Qual Life Outcomes. 2003;1:54–67
- . Health status and health policy: quality of life in health care evaluation and resource allocation. New York: Oxford University Press; 1993;
- . Rode CA: The ‘PedsQL’ measurement model for the pediatric quality of life inventory. Med Care. 1999;37:126–139
- . Physical and mental health summary scales: a user’s manual. Boston, MA: The Health Institute; 1994;
- . Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales. Health Qual Life Outcomes. 2006;4:58
- . The effects of response bias on self-reported quality of life among childhood cancer survivors. Qual Life Res. 2007;16:1211–1220
- . Underreporting by cancer patients: the case of response-shift. Soc Sci Med. 1991;32:981–987
- . Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med. 1999;48:1507–1515
- . Measuring quality of life. Arch Dis Child. 2007;92:348–350
- . Quality of life measurement in oncology – a matter of the assessment instrument?. Eur J Cancer. 2001;37:2349–2356
PII: S0959-8049(09)00168-3
doi: 10.1016/j.ejca.2009.02.025
© 2009 Elsevier Ltd. All rights reserved.
« Previous
Next »
European Journal of Cancer
Volume 45, Issue 10
, Pages 1744-1747
, July 2009
