Measurement and interpretation of social distress using the social difficulties inventory (SDI)☆

Abstract 

Cancer has a significant social impact. There is a requirement to undertake formal assessment of this in research and clinical practice.

Aim

To establish values of clinically meaningful differences and changes in social distress (SOCD) using the social difficulties inventory (SDI).

Methods

Newly diagnosed patients treated with curative intent completed the SDI and the EORTC quality of life questionnaire (EORTC QLQ-C30) at baseline, 6, 12 and 24 months. Minimally important differences (MIDs) were estimated using anchor and distribution methods.

Results

One hundred and eighty-eight patients participated. SOCD was elevated at baseline demonstrating the social burden of cancer on patients following diagnosis. Anchor estimates for MIDs were by age groups 3.37 and in comparison to EORTC QLQ-C30 social functioning scale from 0 to 6.27. Using distribution methods: SEM 2.01–4.92 and SD 1.67–3.57.

Conclusion

For general guidance, an estimate of 3 (range 0–44) is recommended as a clinically important difference, illustrated by case studies and group comparisons.

Keywords: Social problems, Quality of life, Outcome assessment (health care)