European Journal of Cancer
Volume 45, Issue 18 , Pages 3182-3188 , December 2009

The FAMCARE-Patient scale: Measuring satisfaction with care of outpatients with advanced cancer

  • Christopher Lo

      Affiliations

    • Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital, University Health Network, Canada
    • Ontario Cancer Institute, Princess Margaret Hospital, University Health Network, Canada
    • ,
  • Debika Burman

      Affiliations

    • Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital, University Health Network, Canada
    • Ontario Cancer Institute, Princess Margaret Hospital, University Health Network, Canada
    • ,
  • Sarah Hales

      Affiliations

    • Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital, University Health Network, Canada
    • Department of Psychiatry, University of Toronto, Canada
    • ,
  • Nadia Swami

      Affiliations

    • Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital, University Health Network, Canada
    • Ontario Cancer Institute, Princess Margaret Hospital, University Health Network, Canada
    • ,
  • Gary Rodin

      Affiliations

    • Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital, University Health Network, Canada
    • Ontario Cancer Institute, Princess Margaret Hospital, University Health Network, Canada
    • Department of Psychiatry, University of Toronto, Canada
    • ,
  • Camilla Zimmermann

      Affiliations

    • Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital, University Health Network, Canada
    • Ontario Cancer Institute, Princess Margaret Hospital, University Health Network, Canada
    • Division of Medical Oncology and Haematology, Department of Medicine, University of Toronto, Canada
    • Corresponding Author InformationCorresponding author: Address: Palliative Care Services, Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital, 610 University Ave., 16-744, Toronto, Ontario, Canada M5G 2M9. Tel.: +1 (416) 946 4501x3477; fax: +1 (416) 946 2866.

Received 21 June 2009 ,Revised 29 August 2009 ,Accepted 4 September 2009.

References 

  1. Lipscomb J, Reeve BB, Clauser SB, et al. Patient-reported outcomes assessment in cancer trials: taking stock, moving forward. J Clin Oncol. 2007;25(32):5133–5140
  2. Garcia SF, Cella D, Clauser SB, et al. Standardizing patient-reported outcomes assessment in cancer clinical trials: a patient-reported outcomes measurement information system initiative. J Clin Oncol. 2007;25(32):5106–5112
  3. World Health Organisation. WHO definition of palliative care. <http://www.who.int/cancer/palliative/definition/en>; 2009 [accessed 03.06.09].
  4. Bruera E, Kuehn N, Miller MJ, Selmser P, Macmillan K. The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. J Palliat Care. 1991;7(2):6–9
  5. Dy SM, Shugarman LR, Lorenz KA, Mularski RA, Lynn J. A systematic review of satisfaction with care at the end of life. J Am Geriatr Soc. 2008;56(1):124–129
  6. Zimmermann C, Riechelmann R, Krzyzanowska M, Rodin G, Tannock I. Effectiveness of specialized palliative care: a systematic review. JAMA. 2008;299(14):1698–1709
  7. Hales S, Zimmermann C, Rodin G. The quality of dying and death. Arch Intern Med. 2008;168(9):912–918
  8. Mularski RA, Dy SM, Shugarman LR, et al. A systematic review of measures of end-of-life care and its outcomes. Health Serv Res. 2007;42(5):1848–1870
  9. Lo C, Burman D, Rodin G, Zimmermann C. Measuring patient satisfaction in oncology palliative care: psychometric properties of the FAMCARE-patient scale. Qual Life Res. 2009;
  10. Kristjanson LJ. Validity and reliability testing of the FAMCARE scale: measuring family satisfaction with advanced cancer care. Soc Sci Med. 1993;36(5):693–701
  11. Follwell M, Burman D, Le LW, et al. Phase II study of an outpatient palliative care intervention in patients with metastatic cancer. J Clin Oncol. 2009;27(2):206–213
  12. Katzman R, Brown T, Fuld P, et al. Validation of a short orientation-memory-concentration test of cognitive impairment. Am J Psychiat. 1983;140(6):734–739
  13. Chang VT, Hwang SS, Feuerman M. Validation of the Edmonton symptom assessment scale. Cancer. 2000;88(9):2164–2171
  14. Schag CA, Heinrich RL, Aadland RL, Ganz PA. Assessing problems of cancer patients: psychometric properties of the cancer inventory of problem situations. Health Psychol. 1990;9(1):83–102
  15. Steinhauser KE, Clipp EC, Bosworth HB, et al. Measuring quality of life at the end of life: validation of the QUAL-E. Palliat Support Care. 2004;2(1):3–14
  16. Oken MM, Creech RH, Tormey DC, et al. Toxicity and response criteria of the Eastern Cooperative Oncology Group. Am J Clin Oncol. 1982;5(6):649–655
  17. Ringdal GI, Jordhoy MS, Kaasa S. Measuring quality of palliative care: psychometric properties of the FAMCARE scale. Qual Life Res. 2003;12(2):167–176
  18. SAS Institute. The MI Procedure: SAS/STAT User’s Guide: SAS OnlineDoc 9.1.2003 [accessed 19.06.09].
  19. Im KS, Grover V. The use of structural equation models in IS research: review and recommendations. In:  Whitman ME,  Woszcznyski A editor. The handbook of information systems research. Idea Group; 2004;p. 44–65
  20. Hatcher L. A step-by-step approach to using the SAS system for factor analysis and structural equation modeling. Cary, NC: SAS Institute; 1998;
  21. Yen WM. Scaling performance assessments: strategies for managing local item dependence. J Educ Meas. 1993;30:187–213
  22. Sulmasy DP, McIlvane JM, Pasley PM, Rahn M. A scale for measuring patient perceptions of the quality of end-of-life care and satisfaction with treatment: the reliability and validity of QUEST. J Pain Symptom Manage. 2002;23(6):458–470
  23. Peterman AH, Fitchett G, Brady MJ, Hernandez L, Cella D. Measuring spiritual well-being in people with cancer: the functional assessment of chronic illness therapy – spiritual well-being scale (FACIT-Sp). Ann Behav Med. 2002;24(1):49–58
  24. Cohen SR, Mount BM, Tomas JJ, Mount LF. Existential well-being is an important determinant of quality of life. Evidence from the McGill quality of life questionnaire. Cancer. 1996;77(3):576–586
  25. Aspinal F, Addington-Hall J, Hughes R, Higginson IJ. Using satisfaction to measure the quality of palliative care: a review of the literature. J Adv Nurs. 2003;42(4):324–339
  26. Donabedian A. The definition of quality and approaches to its assessment. Michigan: 1980.
  27. Aaronson NK, Ahmedzai S, Bergman B, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1993;85(5):365–376
  28. Cella DF, Tulsky DS, Gray G, et al. The functional assessment of cancer therapy scale: development and validation of the general measure. J Clin Oncol. 1993;11(3):570–579
  29. Cohen SR, Mount BM. Quality of life in terminal illness: defining and measuring subjective well-being in the dying. J Palliat Care. 1992;8(3):40–45
  30. Curtis JR, Patrick DL, Engelberg RA, et al. A measure of the quality of dying and death. Initial validation using after-death interviews with family members. J Pain Symptom Manage. 2002;24(1):17–31
  31. Yun YH, Kim SH, Lee KM, et al. Patient-reported assessment of quality care at end of life: development and validation of quality care questionnaire-end of life (QCQ-EOL). Eur J Cancer. 2006;42(14):2310–2317
  32. Morita T, Hirai K, Sakaguchi Y, et al. Measuring the quality of structure and process in end-of-life care from the bereaved family perspective. J Pain Symptom Manage. 2004;27(6):492–501
  33. Loblaw DA, Bezjak A, Bunston T. Development and testing of a visit-specific patient satisfaction questionnaire: the Princess Margaret Hospital satisfaction with doctor questionnaire. J Clin Oncol. 1999;17(6):1931–1938
  34. Wiggers JH, Donovan KO, Redman S, Sanson-Fisher RW. Cancer patient satisfaction with care. Cancer. 1990;66(3):610–616
  35. Trask PC, Tellefsen C, Espindle D, Getter C, Hsu MA. Psychometric Validation of the Cancer Therapy Satisfaction Questionnaire. Value Health 2008.
  36. Casarett D, Karlawish J, Morales K, Crowley R, Mirsch T, Asch DA. Improving the use of hospice services in nursing homes: a randomized controlled trial. JAMA. 2005;294(2):211–217
  37. Hwang SS, Chang VT, Alejandro Y, et al. Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a veterans affairs (VA) medical center. Palliat Support Care. 2003;1(4):319–329
  38. Grunfeld E, Coyle D, Whelan T, et al. Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregivers. CMAJ. 2004;170(12):1795–1801
  39. Dudgeon DJ, Knott C, Eichholz M, et al. Palliative Care Integration Project (PCIP) quality improvement strategy evaluation. J Pain Symptom Manage. 2008;35(6):573–582
  40. Teno JM, Lima JC, Lyons KD. Cancer patient assessment and reports of excellence. Reliability and validity of advanced cancer patient perceptions of the quality of care. J Clin Oncol. 2009;27(10):1621–1626

PII: S0959-8049(09)00675-3

doi: 10.1016/j.ejca.2009.09.003

European Journal of Cancer
Volume 45, Issue 18 , Pages 3182-3188 , December 2009

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