European Journal of Cancer
Volume 46, Issue 6 , Pages 1062-1068 , April 2010

Aspects of quality of life, anxiety, and depression among persons diagnosed with cancer during adolescence: A long-term follow-up study

  • Gunnel Larsson

      Affiliations

    • Corresponding Author InformationCorresponding author: Department of Public Health and Caring Sciences, Psychosocial Oncology and Supportive Care, Uppsala University, Box 564, S-751 85 Uppsala, Sweden. Tel.: +46 18 471 3508; fax: +46 18 471 34 90.
    • ,
  • Elisabet Mattsson
    • ,
  • Louise von Essen

Received 30 June 2009 ,Revised 4 December 2009 ,Accepted 15 January 2010.

References 

  1. Langeveld NE, Grootenhuis MA, Voute PA, de Haan RJ, van den Bos C. Quality of life, self-esteem and worries in young adult survivors of childhood cancer. Psychooncology. 2004;13:867–881
  2. Langeveld NE, Stam H, Grootenhuis MA, Last BF. Quality of life in young adult survivors of childhood cancer. Support Care Cancer. 2002;10:579–600
  3. Stam H, Grootenhuis MA, Caron HN, Last BF. Quality of life and current coping in young adult survivors of childhood cancer: positive expectations about the further course of the disease were correlated with better quality of life. Psychooncology. 2006;15:31–43
  4. Eiser C, Hill JJ, Vance YH. Examining the psychological consequences of surviving childhood cancer: systematic review as a research method in pediatric psychology. J Pediatr Psychol. 2000;25:449–460
  5. Stam H, Grootenhuis MA, Last BF. Social and emotional adjustment in young survivors of childhood cancer. Support Care Cancer. 2001;9:489–513
  6. Bleyer WA. Cancer in older adolescents and young adults: epidemiology, diagnosis, treatment, survival, and importance of clinical trials. Med Pediatr Oncol. 2002;38:1–10
  7. Felder-Puig R, Formann AK, Mildner A, et al. Quality of life and psychosocial adjustment of young patients after treatment of bone cancer. Cancer. 1998;83:69–75
  8. Barr RD. On cancer control and the adolescent. Med Pediatr Oncol. 1999;32:404–410
  9. von Essen L, Enskar K, Kreuger A, Larsson B, Sjoden PO. Self-esteem, depression and anxiety among Swedish children and adolescents on and off cancer treatment. Acta Paediatr. 2000;89:229–236
  10. Pai AL, Drotar D, Zebracki K, Moore M, Youngstrom E. A meta-analysis of the effects of psychological interventions in pediatric oncology on outcomes of psychological distress and adjustment. J Pediatr Psychol. 2006;31:978–988
  11. Apajasalo M, Sintonen H, Siimes MA, et al. Health-related quality of life of adults surviving malignancies in childhood. Eur J Cancer. 1996;32A:1354–1358
  12. Pemberger S, Jagsch R, Frey E, et al. Quality of life in long-term childhood cancer survivors and the relation of late effects and subjective well-being. Support Care Cancer. 2005;13:49–56
  13. Zeltzer LK, Lu Q, Leisenring W, et al. Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: a report from the childhood cancer survivor study. Cancer Epidemiol Biomarkers Prev. 2008;17:435–446
  14. Elkin TD, Phipps S, Mulhern RK, Fairclough D. Psychological functioning of adolescent and young adult survivors of pediatric malignancy. Med Pediatr Oncol. 1997;29:582–588
  15. Jorngarden A, Mattsson E, von Essen L. Health-related quality of life, anxiety and depression among adolescents and young adults with cancer: a prospective longitudinal study. Eur J Cancer. 2007;43:1952–1958
  16. Jorngarden A, Wettergen L, von Essen L. Measuring health-related quality of life in adolescents and young adults: Swedish normative data for the SF-36 and the HADS, and the influence of age, gender, and method of administration. Health Qual Life Outcomes. 2006;4:91
  17. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). Conceptual framework and item selection. Med Care. 1992;30:473–483
  18. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67:361–370
  19. Ware JE, Snow KK, Kosinski M, Gandek B. SF-36 Health Survey manual and interpretation guide. Boston: New England Medical Centre; 1993;
  20. Ware JE, Kosinski M. Interpreting SF-36 summary health measures: a response. Qual Life Res. 2001;10:405–413[discussion 415-20]
  21. White D, Leach C, Sims R, Atkinson M, Cottrell D. Validation of the Hospital Anxiety and Depression Scale for use with adolescents. Br J Psychiatr. 1999;175:452–454
  22. Collins JJ, Byrnes ME, Dunkel IJ, et al. The measurement of symptoms in children with cancer. J Pain Symptom Manage. 2000;19:363–377
  23. Docherty SL, Sandelowski M, Preisser JS. Three months in the symptom life of a teenage girl undergoing treatment for cancer. Res Nurs Health. 2006;29:294–310
  24. Servitzoglou M, Papadatou D, Tsiantis I, Vasilatou-Kosmidis H. Psychosocial functioning of young adolescent and adult survivors of childhood cancer. Support Care Cancer. 2008;16:29–36
  25. Parry C, Chesler MA. Thematic evidence of psychosocial thriving in childhood cancer survivors. Qual Health Res. 2005;15:1055–1073
  26. Mattsson E, Ringner A, Ljungman G, von Essen L. Positive and negative consequences with regard to cancer during adolescence. Experiences two years after diagnosis. Psychooncology. 2007;16:1003–1009
  27. Woodgate RL. A review of the literature on resilience in the adolescent with cancer: Part II. J Pediatr Oncol Nurs. 1999;16:78–89
  28. Hudson MM, Mertens AC, Yasui Y, et al. Health status of adult long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. JAMA. 2003;290:1583–1592
  29. Tedeschi RG, Calhoun LG. Posttraumatic growth: conseptual foundations and empirical evidence. Psychological Inquiry. 2004;15:1–18
  30. Maunsell E, Pogany L, Barrera M, Shaw AK, Speechley KN. Quality of life among long-term adolescent and adult survivors of childhood cancer. J Clin Oncol. 2006;24:2527–2535
  31. Landolt MA, Vollrath M, Niggli FK, Gnehm HE, Sennhauser FH. Health-related quality of life in children with newly diagnosed cancer: a one year follow-up study. Health Qual Life Outcomes. 2006;4:63
  32. Abrams AN, Hazen EP, Penson RT. Psychosocial issues in adolescents with cancer. Cancer Treat Rev. 2007;33:622–630
  33. Boscarino JA. Posttraumatic stress disorder and physical illness: results from clinical and epidemiologic studies. Ann NY Acad Sci. 2004;1032:141–153
  34. Perkins JJ, Sanson-Fisher RW. An examination of self- and telephone-administered modes of administration for the Australian SF-36. J Clin Epidemiol. 1998;51:969–973
  35. Duncan P, Reker D, Kwon S, et al. Measuring stroke impact with the stroke impact scale: telephone versus mail administration in veterans with stroke. Med Care. 2005;43:507–515
  36. Fournier L, Kovess V. A comparison of mail and telephone interview strategies for mental health surveys. Can J Psychiatr. 1993;38:525–533
  37. Garcia M, Rohlfs I, Vila J, et al. Comparison between telephone and self-administration of Short Form Health Survey Questionnaire (SF-36). Gac Sanit. 2005;19:433–439
  38. Bowling A. Mode of questionnaire administration can have serious effects on data quality. J Public Health (Oxf). 2005;27:281–291
  39. Mattsson E, El-Khouri B, Ljungman G, Von Essen L. Empirically derived psychosocial states among adolescents diagnosed with cancer during the acute and extended phase of survival. Ann Oncol. 2009;20:1722–1727

PII: S0959-8049(10)00040-7

doi: 10.1016/j.ejca.2010.01.021

European Journal of Cancer
Volume 46, Issue 6 , Pages 1062-1068 , April 2010

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