European Journal of Cancer
Volume 46, Issue 6 , Pages 1069-1078 , April 2010

Comparison of self-reported late effects with medical records among survivors of childhood cancer

  • Naomi Taylor

      Affiliations

    • University of Sheffield Medical School, Beech Hill Road, Sheffield, UK
    • ,
  • Kate Absolom

      Affiliations

    • Psychosocial Oncology and Clinical Practice Research Group, Bexley Wing, St. James’s Institute of Oncology, Beckett Street, Leeds, UK
    • ,
  • Gisela Michel

      Affiliations

    • Department of Psychology, University of Sheffield, Western Bank, Sheffield, UK
    • ,
  • Tanya Urquhart

      Affiliations

    • Sheffield Children’s Hospital, Department of Haematology/Oncology, Western Bank, Sheffield, UK
    • ,
  • Mary Gerrard

      Affiliations

    • Sheffield Children’s Hospital, Department of Haematology/Oncology, Western Bank, Sheffield, UK
    • ,
  • Anna Jenkins

      Affiliations

    • Sheffield Children’s Hospital, Department of Haematology/Oncology, Western Bank, Sheffield, UK
    • ,
  • Vicki Lee

      Affiliations

    • Sheffield Children’s Hospital, Department of Haematology/Oncology, Western Bank, Sheffield, UK
    • ,
  • Ajay Vora

      Affiliations

    • Sheffield Children’s Hospital, Department of Haematology/Oncology, Western Bank, Sheffield, UK
    • ,
  • Christine Eiser

      Affiliations

    • Department of Psychology, University of Sheffield, Western Bank, Sheffield, UK
    • Corresponding Author InformationCorresponding author: Tel.: +44 114 222 6621; fax: +44 0114 276 6515.

Received 22 July 2009 ,Revised 10 December 2009 ,Accepted 15 January 2010.

References 

  1. Magnani C, Pastore G, Coebergh J, et al. Trends in survival after childhood cancer in Europe, 1978–1997: report from the Automated Childhood Cancer Information System Project (ACCIS). Eur J Cancer. 2006;42:1981–2005
  2. Gatta G, Zigon G, Capocaccia R, et al. Survival of European children and young adults with cancer diagnosed 1995–2002. Eur J Cancer. 2009;45:992–1005
  3. Ellison LF, Pogany L, Mery LS. Childhood and adolescent cancer survival: a period analysis of data from the Canadian Cancer Registry. Eur J Cancer. 2007;43:1967–1975
  4. Geenen MM, Cardous-Ubbink MC, Kremer LC, et al. Medical assessment of adverse health outcomes in long-term survivors of childhood cancer. JAMA. 2007;297:2705–2715
  5. Oeffinger KC, Mertens AC, Sklar CA, et al. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med. 2006;355:1572–1582
  6. Oeffinger KC, Hudson MM. Long-term complications following childhood and adolescent cancer: foundations for providing risk-based health care for survivors. CA: Cancer J Clin. 2004;54:208–236
  7. Eiser C, Hill JJ, Vance YH. Examining the psychological consequences of surviving childhood cancer: systematic review as a research method in pediatric psychology. J Pediatr Psychol. 2000;25:449–460
  8. Blaauwbroek R, Groenier KH, Kamps WA, Meyboom-de Jong B, Postma A. Late effects in adult survivors of childhood cancer: the need for life-long follow-up. Ann Oncol. 2007;18:1898–1902
  9. NICE. Improving Outcomes in Children and Young People with Cancer; 2005. p. 77–80.
  10. Skinner R, Wallace W, Levitt G, editors. Therapy based long term follow-up: practice statement. UK Children’s Cancer Study Group. <http://www.ukccsg.org.uk/public/followup/> [cited 25.03.09].
  11. Wallace WH, Blacklay A, Eiser C, et al. Developing strategies for long term follow up of survivors of childhood cancer. Br Med J. 2001;323:271–274
  12. Eiser C, Absolom K, Greenfield D, et al. Follow-up after childhood cancer: evaluation of a three-level model. Eur J Cancer. 2006;42(18):3186–3190
  13. Kadan-Lottick NS, Robison LL, Gurney JG, et al. Childhood cancer survivors’ knowledge about their past diagnosis and treatment: Childhood Cancer Survivor Study. JAMA. 2002;287:1832–1839
  14. Absolom K, Greenfield D, Ross R, et al. Predictors of clinic satisfaction among adult survivors of childhood cancer. Eur J Cancer. 2006;42:1421–1427
  15. Earle EA, Davies H, Greenfield D, Ross R, Eiser C. Follow-up care for childhood cancer survivors: a focus group analysis. Eur J Cancer. 2005;41:2882–2886
  16. Barakat LP, Kazak AE, Meaddows AT, et al. Families surviving childhood cancer: a comparison of posttraumatic stress symptoms with families of healthy children. J Pediatr Psychol. 1997;22:843–859
  17. Stuber ML, Christakis DA, Houskamp B, Kazak AE. Posttrauma symptoms in childhood leukemia survivors and their parents. Psychosomatics. 1996;37:254–261
  18. Blaauwbroek R, Tuinier W, Meyboom-de Jong B, Kamps WA, Postma A. Shared care by paediatric oncologists and family doctors for long-term follow-up of adult childhood cancer survivors: a pilot study. Lancet Oncol. 2008;9:232–238
  19. Davies H, Greenfield D, Ledger W. Reproductive medicine in a late effects of cancer clinic. Hum Fertil. 2003;6:9–12
  20. Greenfield D, Absolom K, Davies H, Ross R, Eiser C. Childhood cancer survivors: transition from pediatric to adult care. Curr Med Lit GH Growth Factor. 2003;18:83–91
  21. SIGN. Long term follow up of survivors of childhood cancer. A national clinical guideline. In: Scottish Intercollegiate Guidelines Network (SIGN); 2004.
  22. Stevens MC, Mahler H, Parkes S. The health status of adult survivors of cancer in childhood. Eur J Cancer. 1998;34:694–698
  23. Lee Y-L, Santacroce SJ. Posttraumatic stress in long-term young adult survivors of childhood cancer: a questionnaire survey. Int J Nurs Stud. 2007;44:1406–1417
  24. Oeffinger KC. Longitudinal risk-based health care for adult survivors of childhood cancer. Curr Probl Cancer. 2003;27:143–167
  25. Addis ME, Mahalik JR. Men, masculinity and the contexts of help seeking. Am Psychol. 2003;58:5–14
  26. Oeffinger KC, Eshelman DA, Tomlinson GE, Buchanan GR, Foster BM. Grading of late effects in young adult survivors of childhood cancer followed in an ambulatory adult setting. Cancer. 2000;88:1687–1695
  27. Schrag NM, McKeown RE, Jackson KL, Cuffe SP, Neuberg RW. Stress-related mental disorders in childhood cancer survivors. Pediatr Blood Cancer. 2008;50:98–103
  28. Detmar SB, Aaronson NK, Wever LDV, Muller M, Schornagel JH. How are you feeling? Who wants to know? Patients’ and oncologists’ preferences for discussing health-related quality of life issues. J Clin Oncol. 2000;18:3295–3301
  29. Passik SD, Dugan W, McDonald MV, Rosenfeld B, Theobald DE, Edgerton S. Oncologists’ recognition of depression in their patients with cancer. J Clin Oncol. 1998;16:1594–1600

PII: S0959-8049(10)00041-9

doi: 10.1016/j.ejca.2010.01.022

European Journal of Cancer
Volume 46, Issue 6 , Pages 1069-1078 , April 2010

Article Tools

* Image Usage & Resolution